Day +405 (12/11/2013)
- WBC: 4.84
- HGB: 11.7
- Platelet: 224
- Port flush, 200 cc of phlebotomy and pentamidine aerosol done
- Continue cyclosporine taper - down to 0.1 mL today and stop on Christmas day!!!
- Referral made to Emory Ophthalmology and Dentist for annual exam post-BMT
- May go back to school in January with no special restrictions. Delay on vaccinations. Plan to restart within 3 to 6 months off of cyclosporine.
- WBC: 5.27
- HGB: 10.7
- Platelet: 205
- 200 cc of phlebotomy and pentamidine aerosol done
- Decrease cyclosporine to 0.3 mL today and to 0.2 mL on 11/27
For last two months, I've been trying really hard to accept the fact that Viki has a chronic eczema and that she might live with it for a while or maybe for the rest of her life. This led me to a point where I really needed to just let go and move on with our lives. So in the spirit of moving forward, instead of getting stressed over it, we did fun things. Things that we were reluctant to do in the past: we took Viki to Stone Mountain, parks, museum, movie, ice skating, and decorated Christmas tree together and had a blast. By doing so, my heart was filled with peace and gratitude. This year was another miracle year for us. So much to be thankful and humble. I'm thrilled about what 2014 will bring us and really looking forward to our new normal including Viki going to school for the very first time.Yeah!!!
Merry Christmas and Happy New Year everyone!
Merry Christmas and Happy New Year everyone!
