Day +36
Clinic day
School work

Recap on Clinic visit

• WBC: 2.16
• HGB: 8.1
• Platelet:91
• Resume Bactrim this weekend b/c her ANC is greater than 1,000.
• Sodium count is little low and one of her kidney numbers(BUN) is slightly high: Needing to encourage Victoria to drink more Gatorade since it has sodium and will re-evaluate the counts on next Tuesday.

 

Praise the Lord, our prayers have answered!!!

At the clinic this morning, we were waiting for the counts in the room as usual.
Then, PA. Elyse walked in and handed me this paper and wanted me to read it.
So I did.

It was the results from Chimerism test (aka Fish test) and it says Victoria has 100% of donor's cells.  As I was reading it, I could not help but cry. I called my hubby right away and, I could tell he was tearing up too. This time, it was a happy cry and cry of joy. 

Thank you God, you have truly proven that you are walking with us every step of the way in our journey.  Though Victoria's match was not a perfect one (9 out of 10), the Lord filled in the rest of 10% and completed it.  God is perfect!!!  Once again, HUGE thanks to our life-saving donor from Korea.  He has given our Victoria a priceless gift: a second chance at life. We are counting the days to meet him in person. God bless him!  Much kisses and hugs for my little inspiration, Victoria. She was such a champion the entire time. Lastly, thank everyone for lifting prayers for our little Victoria in Christ. Amen!

I almost released a sigh of relief but, realized that our journey was not over yet. We still have to reach the +100 days which is a first big milestone of this journey.  Between now till 100 days,  I will need to watch more closely for the symptoms of acute GVHD. GVHD occurs when the donor cells(the graft) see the patient's body(the host) as foreign and starts to attack. Victoria is at a higher risk of it since she had a mismatched/unrelated donor transplant. Secondly, I will continue to pray that relapse does not occur.  Relapse means the return of original disease.  It is rare but, still possible for relapse to happen after transplant. On day +100, she is scheduled for 1)another Fish test to see if she is still growing 100% of donor cells and 2) bone marrow biopsy to check how well her other organs are functioning.  I would like to ask all of you again, please continue to pray for Victoria.

Please pray that Victoria will finish her BMT marathon successfully without GVHD and relapses.
Dear God, please uphold donor cells, her counts, her strength and her spirits. Amen!


믿음의 기도는 병든 자를 구원하리니 주께서 그를 일으키시리라. (약5:15)

너무도 바랬던 소식, 100% 도너셀임을 확인했을때 아무말도 할수 없이 그저 눈물만 나왔다. 클리닉에서 승리를 껴안고 한참을 울었다. 그리고 숙소로 돌아와서 "하나님, 감사합니다" 라고 승리랑 둘이서 목이 터져라 함성을 질렀다. 그동안 우리 세식구랑 같이 울고 웃고 했던 모든 사람들의 얼굴이 떠올랐고, 기쁨에 오늘 하루가 어떻게 지나갔는지 모르겠다. 돌이켜보면 한고비, 한고비마다 쉽진 않았지만, 그렇다고 안된것도 하나 없었다. 자기전에 승리한테 기도해 주면서 나는 하나님께 고백했다, 우리 승리를 예수님의 자녀로 키우겠다고, 승리 자신의 일신을 위해서가 아니라, 하나님의 의를 이루기위해서 100% 도너셀을 선사하신 주님의 뜻을 평생 잊지 않겠다고... 주님, 감사합니다!!

하지만 결코 여기서 끝이 아니다.  우리 승리가 GVHD걸리지 않고, 다시 재발되는 일없이 무사히 이 마라톤을 완주 할수 있도록 나는 오늘도 또 기도한다. 그리고 내일도...

Here are some pictures from today.

Dressed up in an infection prevention fashion

Calling for a shuttle ride at the lobby  

all bundled up

 Waiting for her counts at the clinic

 "giggling & wiggling" during her PE with Ms. Elyse

 Thank you for bringing us this awesome news, Dr. Elyse. You are an angel!

With Grandma

A recent family picture.

 We're alive and kicking.