Recap on clinic visit
- WBC: 4.95
- HGB: 10.7
- Platelet: 216
- 200cc of phlebotomy and pentamidine aerosol done
- Continue cyclosporine tapering, going down by 0.1ml every 2 weeks:
Sept 4 - 0.6 mL
Sept 18 - 0.5 mL
Oct 2 - 0.4 mL
Oct 16 - 0.3 mL
Oct 30 - 0.2 mL
Nov 13 - 0.1 mL
Nov 27 - OFF!
- Continue lasix, since potassium still on the higher side. Hope to stop over the next few months as we keep eye on potassium
- No hydrocortisone to skin unless red/itchy
The day after Viki's 6th birthday, my niece, Eunice(Eunbi) came from Korea to spend 3 weeks with us. It was like summer home camp: Viki and Eunice did everything together. They played, ate, studied, danced, laughed and prayed together. My main focus was well-being of them and nothing else. I just wanted both of them to be physically & mentally healthy while they had fun. I called this the Healing Camp! Hope that the girls will remember this fun-filled summer of 2013.
My biggest challenge was feeding them well in terms of BMT safe diet while maintaining kids friendly meal. My hubby was a big help. We turned out to be a good team.
On the last day, we went to the airport to see Eunice off.
Parting was such a sweet sorrow.
Bye~ bye~ Eunice, we'll miss you.















































































































































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