Wednesday, August 21, 2013

Summer Home Camp

Day +293 Clinic day

Recap on clinic visit
  • WBC: 4.95
  • HGB: 10.7
  • Platelet: 216
  • 200cc of phlebotomy and pentamidine aerosol done
  • Continue cyclosporine tapering, going down by 0.1ml every 2 weeks: 
         August 21 - 0.7 mL twice a day
         Sept 4 - 0.6 mL
         Sept 18 - 0.5 mL
         Oct 2 - 0.4 mL
         Oct 16 - 0.3 mL
         Oct 30 - 0.2 mL
         Nov 13 - 0.1 mL
         Nov 27 - OFF!
  • Continue lasix, since potassium still on the higher side. Hope to stop over the next few months as we keep eye on potassium
  • No hydrocortisone to skin unless red/itchy


The day after Viki's 6th birthday, my niece, Eunice(Eunbi) came from Korea to spend 3 weeks with us. It was like summer home camp: Viki and Eunice did everything together. They played, ate, studied, danced, laughed and prayed together. My main focus was well-being of them and nothing else. I just wanted both of them to be physically & mentally healthy while they had fun. I called this the Healing Camp!  Hope that the girls will remember this fun-filled summer of 2013.



My biggest challenge was feeding them well in terms of BMT safe diet while maintaining kids friendly meal. My hubby was a big help. We turned out to be a good team.

On the last day, we went to the airport to see Eunice off.
Parting was such a sweet sorrow.
 Bye~ bye~ Eunice, we'll miss you.




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